Friday, March 27, 2009

MDA day 50

Well, it is day 50 here and we are not "supposed to" be counting anymore. But, that is a way that Andrea knows just how long it is taking her to recover from this aspiration pneumonia gig. We do now know from tests this week that she can aspirate just from normal saliva each day, most likely when sleeping or even nappping when Andrea cannot grab the suction tube to get the stuff out of her mouth before it goes down into the lungs. She has started coughing, (that is good) otherwise it would go straight to the lungs. That is what aspiration is .....when any fluid goes to the lungs instead of the stomach. Anyway, Andrea is getting better, but the steps are smaller than she would like. So, we continue to pray for aspiration to stop and the neurological condition to improve.
Thank you for your prayers as we continue to pray for you and your family too.

Tuesday, March 24, 2009

MDA day 47

Good things are happening, like seeing Zeus on the outside benches of MDA this past weekend. Oh, relatives were visiting too, which was a great bonus as they could actually talk! But, the visits were good and uplifted our spirits. Andrea also had a "wheelchair fitting" yesterday so she can be more comfortable as she is trying to be more mobile. She is being unhooked from all the meds every day for a few hours so rehab can work with her in their facility at MDA. We are starting talk of "going home" even though no one knows when that will be. A swallow test will be performed tomorrow, so hopefully that will be another step forward in figuring out why this aspiration pneumonia occurred and what can be done about it.
Thank you for your prayers as we remember to pray for you and your families.

Friday, March 20, 2009

MDA Day 43, Spring

Today is the first day of spring and after 43 days, Andrea happily got to go outside in her wheelchair for "real air and sunshine". She is doing better each day with physical therapy. We are real glad that she is sitting up, but she is hard on herself because she is not sitting up "straight". We know that it will happen as she becomes stronger, but it's hard for her to not be able to do that now. (You all know her "can do" personality.....) I am now waking up with a "to do" list for the day, and that makes me happy : ) We think dialysis will either be 2 or 3 days a week, but I'm predicting it will be less sooner rather than later.
Thank you for your prayers as we remember you and yours, too.

Tuesday, March 17, 2009

MDA Day 40

March 17 Happy St. Patrick's Day. It was one year ago Andrea received her 2nd stem cell transplant from her sister, Kristin. She's as anxious to get out this time as last year. Andrea had a really good morning. Her bed can be manuvered to a sitting position with her feet dropped down. She stayed that way 2 hours this morning and then the PT and OT came in and moved her to wheelchair. She used her left arm to help the therapist push the wheelchair around the 11th floor. She continued sitting in the wheelchair for a shampoo and stay there until well after lunch. I think she will be sore from so much activity, but knowing Andrea she will count it as gain because of using muscles she so desperately wants to use. The lungs are improving and please continue to pray for the neurological condition.

Wednesday, March 11, 2009

MDA day 34

I'm sorry it's taken me a week to get back to this blog, but we have been working real hard with Andrea. I had a bad feeling when Andrea was bleeding from the dialysis catheter insertion. She also had too much fluid removed in dialysis that same day and it caused her blood to desaturate (not enough oxygen in the blood). She had taken 5 steps forward in recovery, then with this desaturation, she took 10 steps back. Her goal is get out of the hospital and it is not happening as quick as we would like for it to. Please continue to pray for the neurological issues to clear.

Wednesday, March 04, 2009

MDA day 27

When I told Andrea it was March 4 today, she said "Wow, I've got to get out of here". Her attitude is refreshing. The lung x-rays are improving, but still showing some pneumonia. Respiratory therapy is helping a lot.
Andrea had a permanent dialysis catheter put just below her collar bone this morning. She was receiving dialysis right after the procedure for putting the catheter in and there was extra blood that a mom gets nervous about seeing, so it was a good time for me to leave so I can be refreshed for my night time shift. She may not need dialysis every day, but at least the catheter is there if she does need it. Andrea is weak but will push herself to the limits for physical therapy. She has some real good PTs.
We are seeing some neurological improvements and those can only come from your prayers. Thank you for your faithful prayers.