Forward

After a long frustrating day last Friday of receiving meds and platelets, Saturday was the turning point when Andrea did not have pain. She didn't have it all this week either, so when the tests came back with no detection of the viruses yesterday, Andrea was doubly relieved. Her platelets continued to drop this week but at a much slower pace. She does not have to have the continuous hydration 24/7 and is free from the pump and bag of saline. What a relief! So now, with God's help, onward with healing.

Better than Last Week

Andrea is feeling better now than she did last week. She received platelets on Friday and they seem to have "stuck with her" through the weekend. She will be having tests this week to determine if the viruses are still lurking and how much additional medicine will be necessary. Without the additional meds, she takes between 25-30 pills a day. So, prayers for her platelets and strength are so much appreciated.

Bacteria Down, 2 Viuruses to Go

MDA protocol keeps plugging on, as Andrea strives to feel better. After 2 "all clear" test reports, we can safely say the bacteria is gone.
Tomorrow and Friday are her regular days for treatment of the 2 viruses that are so pesky and take all day and then some at MDA hospital Ambulatory Treatent Center. Pain management has helped with the side effects of the viruses somewhat. However, side effects of this helpful medicine include dizziness and loss of concentration, which Andrea makes into a joke at times that us both laugh at what could be a crying situation.
Your prayers help the best, so please keep them coming!

Baby steps

Andrea had to receive blood and platelet infusions today since both were very low. Her kidney function level was slightly high, so they would not give her the once a week treatment for the virus. She will receive fluids and meds at home this weekend and they will try to see if her levels improve enough by Monday to get the virus medicine.
On a more positive note, the new medicine from pain management has helped enough that she is not in constant pain. There continues to be a dull pain, but she can sleep for a couple of hours at a time without interuption....which is at least an improvemtent.
Thank you for your prayers.

Pain Management

Andrea went to the MDA Pain Management Doctor today to see if he had anymore suggestions to ease the pain she is faced with. He actually had a different medication to try and had some moral support since his wife is undergoing treatment for cancer at this time, too. It is a really tough road to go down right now, but I truly believe Andrea can turn that corner to feel better soon.
Your prayers and support are so much appreciated.

Ups and Downs

One day "this" is feeling better, but then "that" is not, then the next day "that" is feeling better but "the other thing" is not. So, "there" is the life of healing day by day, baby step by baby half step. This transplant is especially hard on Andrea, and I am amazed how she is braving through it. The advanced practitioner nurse and her doctor are keeping close tabs on her daily progress as she goes to MDA each day, but that does not ease the pain she goes through. She had to have platelets on Friday and blood infusions on Saturday at MDA.
Just please keep praying because God listens to us and we believe His miracles prevail.
We had a nice Mother's Day at our house and are blessed by our children.

Powerful prayer request

With the immune suppresant drugs Andrea is taking for the stem cell transplant to take place, she is fighting 2 viruses and a bacteria that are trying to take over her system. We need powerful prayers as she goes into MDA tomorrow for new drugs and the will to fight these adversaries. She wants so badly to feel good again; and with God's will, her tenacity and your prayers, we know it will happen. Thank you for your powerful prayers.
Matt. 7:7-8 Ask, seek, knock. For everyone who who asks receives; he who seeks finds; and to those who knock, the door will be opened.

This past week has been very difficult for Andrea. The virus continues to cause discomfort and for her to loose sleep. The doctors have a plan to help her get rid of this but it is causing pain in her kidneys. Please pray for this to clear up. She also received a spinal tap with chemo this past Friday. She's really been going through a lot and is exhausted.
In addition to all this, Andrea is in a new clinical study in which she will receive the new Vidaza shots Monday through Friday.
We appreciate all your prayers.

The good news and the bad news

I really hestitate to post good news because of so many other things going on. But.....
There really is good news, like Andrea making her own plateltets now, (and thank you to all those who contributed, because of privacy laws we do not know exactly whose platelets she got, but she got a real boost from some of you who I KNOW were in there on particular days....). Andrea is above 100 platelets and has been making her own for the last couple of days now, which Great News. (140 platelets is normal, so she still has a few more to go on her own.)
Her bone marrow biopsy also came back very encouraging with all donor cells in 40 percent of bone marrow. (Yeah!)
But, she is having difficulty in some other areas she did not have during the last transplant process. Some irritations and viruses are popping up that are causing havoc, so she continues to really need prayers for comfort and healing. The itchiness, burning or sleeplessness is awful. Any and all of these are "normal" for stem cell transplant patients, but that does not really help when there is no real relief other than "time".
We do thank you for each and every prayer.

Hey, how about that?

I just mention the possibility of Andrea getting to take home her backpack of fluids, everyone keeps praying for her, and it happens! Andrea had been going through a routine of receiving platelets and gradually losing them by "15" each day until she hit bottom and needed them again. Well, Friday for the first time since her transplant, Andrea gained "3" instead of losing "15". So, that meant that she did go home and J. became the one in charge of hooking up bags of fluid and medicine with a battery powered pump over the weekend so Andrea could stay at home instead of reporting to MDA.
She is slowly regaining strength each day and we appreciate you thinking of her.

One Month Down

Today is April 17, and Andrea received the stem cell transplant on St, Patrick's Day, March 17. One month down, and she feels awful in many ways but the doctor and nurses say that she is doing Good. But, then they want to know how, when and where the yuckiness is and how bad, so they can determine how they can help. This is the ritual for the next two and a half months which make up the 100 days release time out of the hospital, which was April 1. No fooling. Last time I counted, Andrea was taking 24 pills a day, which did not account for the IV fluids she is hooked up to. They are talking about sending Andrea home Friday with a backpack of fluids with a pump to sustain her so she will not have to tumble out of bed Saturday morning to come to the hospital. We'll see....
So, please keep praying, as we do believe in the power of God over all.
We send love to all who keep reading this blog and keeping positive thoughts coming our way.

Rough Week

We haven't posted any progress because it really has been much of the same pains and all the strength Andrea can pull together to get up each morning and go to MDA for the whole day receiving the meds and fluids she needs.
But, Sunday night she had a major rash outbreak from her ankles to the back of her ears. Her main Stem Cell Transplant doctor made a special visit during his regular clinic lunch hour to the special MDA unit Andrea goes to each day to verify that he thinks it is the "graft versus host" syndrome that transplant patients need in order for the transplant to work. It causes extreme itching which they can try to control with medication. They also took a biopsy of her skin which will help confirm it is "graft versus host". We are just hoping that this, too, will pass with the best results possible and total healing.
We continue to keep Andrea updated on your prayers and comments. They are such a comfort.

+21 days

On this 21st day from the stem cell transplant, Andrea is experiencing bone pain (maybe from stem cell grafting) that was bad enough for her doctor to prescribe 2 more medicines. On the last transplant, she was still in the hospital with a pain pump and nurses and doctors around the clock. This time, she is working it through with us and about 5-8 hours at the hospital each day getting fluids and platelets while a nurse monitors the blood draw numbers and calls the doctor when medicine needs to be prescribed. It has been a week since we saw a doctor and tomorrow we finally get to actually see him again. She is still in a lot of discomfort tonight. We pray for better days ahead!

Encouragement

Thank you all for your encouragement. Andrea's stomach, head and bones are still very sensitive and anything (or who knows what....like medicine, the rest of the chemo in her body, or grafting cells) can set off a an adverse reaction. She has averaged platelets every other day in the Ambulatory Treatment Center 10th floor outpatient unit. It really is like a full time job going to it all day to receive fluids and meds, then returning home at night. She even has to go over the weekend. BUT at least Andrea gets to sleep in their own bed at night and that alone is worth A LOT.
It is great you keep praying for her strength each day. She feels it.

No April Fools!

No April Fools joke: Andrea is at home tonight, getting to sleep in her and J's own bed! The new doctor "on rounds" saw Andrea when she was out this morning doing her exercise walking and was impressed by her spunk even before he got to her room to do her assessment. He looked at her blood draw numbers, nurses' reports and by what she was telling him that she felt better today than yesterday, he let her go home.
Now, she has 100 days of returning to MDA each day for fluids, meds and assessment to really get well again..... but at least she can go home each night to sleep peacefully.
Thank you all for your continued prayers and an extra thank you for those who gave platelets because Andrea is still receiving those platelets and will be assessed each day to see if she needs more. You ALL are terrific!

Different Doctor

There was a shift change in doctors today and the new doctor wanted Andrea to go to the discharge class on Tuesday, see if she could tolerate all the medicine in pill form, and see if her headaches ease up. So, it looks like the earliest Andrea can bust out of here is by Wednesday.
Please keep praying for her stomach and lack of headaches to cooperate!

Great Gain

Just overnight Andrea's white blood cell count jumped from .7 to 2.5. Wow! Thank you so much for our plea for platelets. As you can see, Andrea responded well to them, and she is still receiving them. The doctor said if she continues on this path, she may get to go home on Tuesday. This is a week and a half earlier than we anticipated. It is such good news for her.
BUT, she still needs your continued prayers for her stomach, though. The chemotherapy really tore it up and she has a constant stomach ache, pain, cramps or all of them together. It poses a real dilemma as they are trying to switch all meds to pill form and many of you know how certain pills affect your stomach. We are confident that time and prayer will get Andrea through this.

Doctor's Report

Well, the Doctor says Andrea is doing well at this point of the transplant. Her white blood cells came up to .7 (and the normal is 4.0), which is GOOD since she has been as low as 0 for several days.
Your prayers are working, but she anxious for some days now to get this all behind her. It helped to have girlfriends to show up for her birthday in the hospital (I know to have a confined birthday), but to have one at all is a blessing!!!!
Thank you all for your prayers and most especially to all of those who have given your platelets or blood to help Andrea combat this disease.
The Lord does listen to our prayers.

There's Sunshine Behind the Clouds

Even though Andrea is experiencing all the aches, pains and fever that is expected with treatment, the doctor said she is doing well for all that is anticipated. She had no fever this morning and her white cell count Finally came up from zero to .2, so hopefully she can start momentum towards the healthy direction again. We know she can do it, with God's miracles and your prayers.
Ask and it will be given to you; seek and you will find; knock and the door will be opened to you. Matthew 7:7

Got Platelets!

Andrea got the platelets that she needed late this afternoon. Thank you so much for those of you who are taking time out of your busy schedules and work to come by MDA to donate blood and platelets. I know it is an extra challenge with the construction down here in the medical center, but it is truly appreciated. Andrea is in the "rough" part of the treatment, but she is a real trooper and is hanging in there.